Tag: Lifestyle
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Autopilot
It’s funny how quickly you can find yourself in a pattern or a routine. Normal happens without much thought or planning. You blink and that’s it. My normal has changed considerably in the past year … almost exactly a year in a few weeks. My body has gone from being thrown around from country to…
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More good days than bad 🧡
Finally more good days than bad!
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‘Not my circus, not my monkeys’ just makes you a clown 🙈
Imagine going to a coffee shop and being unable to physically get through the door …
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I feel a bit … normal …
For the first time in 6 months, today I have felt a bit normal! Background – Friday I saw my old hospital cell mate Liz (Hi Liz!) during a hospital appointment. Liz was in a bed opposite me for a week few days/a week of my sentence stay … I can’t remember, it wasn’t very…
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Tired and Dramatic …
My problem is that my brain is fine, it’s just my body that is not always cooperating.
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Good times ahead!
This is a once in a life time opportunity. I would never have CHOSEN to cut my hair short, let alone this short! But this is where we are so we might as well have some fun! and now it’s done 🥰 … and I actually kind of love it!
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Calling on Dr Google and Social Media once more!
Please note, yes, I have NHS rage … but my rage is at the current state of the NHS not the NHS itself … If you, like myself are bored of my moaning, please enjoy the photo of my dog 🥰 Current Rage As I have mentioned numerous times, my hair is falling out. What…
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Tears and Timelines
“Coping with a long-term condition can have a big impact on your mental wellbeing too – research suggests that people living with Crohn’s or Colitis may be twice as likely to experience mental health problems as the general population.” Crohn’s and Colitis UK 👆 Well that’s good init! It really doesn’t come as much of…
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Update: 15th August
Thursday Nurses Nurse Nurses … First nurse of the day is Monica the Stoma nurse. Where I used to see Lisa and Nav in the hospital, Monica and Debbie will be my out patient Nurses. My uncle also sees Debbie and tells me ‘she’s alright’ which is actually very high praise 🤣. Monica checks my…
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Insta vs Reality
To counteract the poor sleep caused by EVERYTHiNG, I have decided to try and take control. At the moment I am living between two Options – I fall asleep and get a good(ish) night sleep, I sleep too soundly and forget to deal with the stoma bag during the night and deal with the shit-uation…
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Please can you just hold my hand
This is the first post that I am writing in real time. I still have more of my story to add to get us to this point so this will be missing a hella lot of context but I am playing catch quite quickly so bare with. Today has been a shit day I use…
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Death is everywhere …
Each night, alone in the dark surrounded by fear, pain and emptiness, my brain flitted off to two popular locations – 1) Is this it, is this the night that I die? Is this the HOW? My stomach will explode or whatever the hell it is doing? Will it be my Mum or Dad who…
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How it began – Is anybody listening to me???
So going back months, years even, I have had a sensitive stomach … lactose intolerant aka eat pizza at home or with friends and family only 😂 Having a close relationship with the bathroom each morning, lessening as the day goes on with the exception of meal times. It was always just the way I…
My unwilling journey with Crohn’s Disease 