Tag: crohns disease
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I’m dreaming of a Crohn’s free Christmas
… just like the ones I used to know! 🎄 Today we realise the obvious. I have no control over what happens next! This week I have been told I am in a ‘flare up’ which in real terms means inflammation and pain vs remission which means business as ‘new normal’. So now we take…
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This ain’t no Fairytale …
This ain’t no Cinderella Fairytale … Mental Health struggles will not disappear at midnight alongside the strike of 00:00 on a clock. #WorldMentalHealthAwarenessDay2022 can only mean something today on Monday 10th October 2022 if it also means something on 11th, 12th, 13th and every other day, of every other month … otherwise it means nothing.
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Heading back to the real world … ish
Heading back out into the real world … well a baby step at least.
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Tears and Timelines
“Coping with a long-term condition can have a big impact on your mental wellbeing too – research suggests that people living with Crohn’s or Colitis may be twice as likely to experience mental health problems as the general population.” Crohn’s and Colitis UK 👆 Well that’s good init! It really doesn’t come as much of…
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Update: 15th August
Thursday Nurses Nurse Nurses … First nurse of the day is Monica the Stoma nurse. Where I used to see Lisa and Nav in the hospital, Monica and Debbie will be my out patient Nurses. My uncle also sees Debbie and tells me ‘she’s alright’ which is actually very high praise 🤣. Monica checks my…
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Update – 11th August ☀️
Monday I was so bored … no one came round, nothing to do, I potter from seat to seat trying to find somewhere to comfortably wait until …something. I go online and look for the ‘thing’ my do at home thing that’s going to occupy my brain. ‘Make your own soaps’ … no. I did…
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Emergency, Intensive Care and Beyond
I wake groggy and confused, in the weirdest room I have ever been in. There is only one bed that I can see and I feel like I am tied to it. I zone back out. I wake and Mum and Dad are there. They both look emotional, where am I? It’s bright but also…
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Life on the medical ward …
I am in past tense still and am going to share my highs and lows of the 10 days I spent on the ‘Medical Ward’ directly after admission. Thursday 9th June So I wake up on day one to see the Medical Ward in all it’s 5am glory … if you have slept to 5am…
My unwilling journey with Crohn’s Disease 