Category: awareness
-
‘Not my circus, not my monkeys’ just makes you a clown 🙈
Imagine going to a coffee shop and being unable to physically get through the door …
-
I’m dreaming of a Crohn’s free Christmas
… just like the ones I used to know! 🎄 Today we realise the obvious. I have no control over what happens next! This week I have been told I am in a ‘flare up’ which in real terms means inflammation and pain vs remission which means business as ‘new normal’. So now we take…
-
Good times ahead!
This is a once in a life time opportunity. I would never have CHOSEN to cut my hair short, let alone this short! But this is where we are so we might as well have some fun! and now it’s done 🥰 … and I actually kind of love it!
-
Because I can, can, can 💃
Going from I can’t to I can’t ‘yet’ has been so powerful!
-
Weekend Vibes 😎
Checking back in after a few days back at the world of work … I’m so pleased to be back! (Such a Weirdo!😂) Genuinely though, having the routine set, get up, nurses come in the morning have breakfast and my shrinking cocktail of medication, get ready and start my working day 😊 is making a…
-
Heading back to the real world … ish
Heading back out into the real world … well a baby step at least.
-
Calling on Dr Google and Social Media once more!
Please note, yes, I have NHS rage … but my rage is at the current state of the NHS not the NHS itself … If you, like myself are bored of my moaning, please enjoy the photo of my dog 🥰 Current Rage As I have mentioned numerous times, my hair is falling out. What…
-
Tears and Timelines
“Coping with a long-term condition can have a big impact on your mental wellbeing too – research suggests that people living with Crohn’s or Colitis may be twice as likely to experience mental health problems as the general population.” Crohn’s and Colitis UK 👆 Well that’s good init! It really doesn’t come as much of…
-
Update – 11th August ☀️
Monday I was so bored … no one came round, nothing to do, I potter from seat to seat trying to find somewhere to comfortably wait until …something. I go online and look for the ‘thing’ my do at home thing that’s going to occupy my brain. ‘Make your own soaps’ … no. I did…
-
Insta vs Reality
To counteract the poor sleep caused by EVERYTHiNG, I have decided to try and take control. At the moment I am living between two Options – I fall asleep and get a good(ish) night sleep, I sleep too soundly and forget to deal with the stoma bag during the night and deal with the shit-uation…
-
Death is everywhere …
Each night, alone in the dark surrounded by fear, pain and emptiness, my brain flitted off to two popular locations – 1) Is this it, is this the night that I die? Is this the HOW? My stomach will explode or whatever the hell it is doing? Will it be my Mum or Dad who…
My unwilling journey with Crohn’s Disease 