Bored now

Today I have been bored. Oh so very bored.

I woke up … no I didn’t, I was awake all night. *Vera the Vac was playing up and calling out an error message every 2 mins.

So the Tissue Viability Team create a very fancy dressing to work with Vera. Ignore the pink dressing bellow … actually no forget Vera, let’s start with the pink dressing, that was a drainage tube straight into my abdomen and it was removed today which is something to celebrate! 🥳 but I also lost a bet with a nurse as to how long it had been in 😂

I was adamant it was put in during operation number 1 and had stayed there throughout until now. Ashi the ward Sister was sure that it was removed on the same day my gross neck cannula was removed, maybe day 4 post operation 1.

I remember the day, the neck cannula thing was removed, it was Nurse Does not Listen (Nurse DNL) and my fave HCA Shirley, as she started to remove I needed to cough, I had a rattley, tickle that was a little difficult to budge due to the whole stomach situ. I asked the nurse to stop for a moment, she hadn’t actually started removing it yet but on she continued as if I had said nothing.

Try staying still and concentrating on your breathing whilst trying not to cough 😬. Impossible but stay still Nurse DNL says, she removes the cannula, now I am in full panic mode, I cannot breathe, I grab Shirley’s hand, ‘I cannot Breathe’ she begins to talk to me clearly and calmly, she has engaged panic attack mode. Nurse DNL, is trying to lay me down, I cannot breathe and still have that damn tickle, I say no, don’t lay me down and cling onto Shirley and the side of the bed to stay sitting. Nurse DNL grabbed the obs machine and starts doing blood pressure, pulse, heat rate … heart rate is low and dropping she slowly takes her time to check my oxygen rate on every finger to be sure 🙄, they put me on Oxygen level 2 and I stay on that on and off until operation 3.

Turns out, they removed stomach drain at the same time … when?! Before or after I’m? My memory is very clear of this event … I was so sure that I bet and lost an ice lolly and then when mum came into visit she confirmed all that Ashi had said. Whaaaat?!

Turns out my memories of the times between operation 1 and probably 3 are massively flawed – Does that make this blog fact or fiction? 🤣

Every conversation I have confirms to me further just how sick I was then 😬 after operation 1 my reason for being here pain was gone, so I have found it very confusing to realise just how ill I have been between operations 1 and 3, when in my mind I have been on the mend since operation 1, again checked in with mother who confirms exactly this. Mind blown …

Plus I have been so obsessed with the stomach drain and more so obsessing about the removal of the stomach drain and the process that it is baffling my brain that this was a ‘fact’ that I had so wrong.

Ok, let it go now I am down to just Vera and one cannula.

Miss Vera has but one job, that is to suction the moisture/leakage from my operation scar … a wet scar cannot not knit together and due to the nature of Crohn’s, it’s mission really is to make life more difficult so in this scenario it has been encouraging the moisture/leakage.

The black part is just fabric dressing absorbing moisture but also works a bit like a candle wick from the top to bottom leading into Vera, who vaccine packs the whole wound sucks out the moisture. This became blocked last night so was spending the night turning the alarm off. After a loooooong night, of alarms every 2 minute alarms, once this is fixed,

Snooooooze

Snooooooze

So Bored!

Acknowledged Bored … it is the first time I have been bored so that’s another step 🤪

Snooooooze

Mum and Auntie Lorraine come to visit and bring me dinner … I have been looking forward to this all day as Auntie Lorraine is going to wash my hair 😃 Plus I am on a high Protein diet which allows for the best of dinners, Hummus, Pitta, Cheese, Chicken, Tortillas … So happy!

This hair wash actually deserves a post of its own. Basically the joy of a hair wash quickly turned into a horror of massive hair loss. Why can nothing just be easy 🙈😭

Click here for Hair today, gone tomorrow ✂️👩‍🦰

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